PFCC - Newsletter

You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.

To receive the newsletter via email, please Join Our Mailing List.

 

January 2023 Edition

Reflections from the Children's Healthcare Conference

This winter, I had the privilege of attending the Children’s Healthcare Canada Conference in Ottawa in my role as a family advisor at ACH. I travelled with Sarah, a youth advisor from CAYAC (the Child and Youth Advisory Council). Over the three-day event, we attended educational and networking sessions with healthcare professionals, partners, parent advisors, and other leaders in healthcare from across Canada. It was truly a unique experience to hear from individuals who are experts in their field and leading the way for the future of children’s healthcare. As a parent, I was really inspired by the passion I saw and heard expressed in the corporate desire to continue to think innovatively and more inclusively in reaching the goal of bettering healthcare for Canada’s kids. 

 

A family’s story and perspective can be a powerful tool in reshaping the thoughts and hearts of those on the front lines, because it highlights the child as an individual, not just a statistic. As an advisor, our ultimate hope is that we can be integrated throughout the process of healthcare design and decision making – to be embedded in planning and implementation.


Often, there are barriers to how often or in what ways families can be involved such as: childcare, role confusion, lack of opportunities (or not hearing about them), and time. However, there is research happening and work being done to help family advisors be more engaged in their hospitals and feel fulfilled in their work. Only 50 percent of family advisors see themselves as peers with the healthcare professionals they work with, although most say they do feel respected and rewarded in what they do. As we broaden the definition of family, we also make room for more voices to come to the table.


As family advisors we can ask ourselves, “how can we include more voices and perspectives at our tables?” as well as “how can we continue to advocate for all areas and initiatives of healthcare to value and look for the family voice”? We have an amazing community all over Canada we can work with to think more strategically and creatively in these ways. As a parent, I feel truly blessed to be a part of such an amazing community that makes up the Alberta Children's Hospital, as the respect and admiration of ACH extends across the country.


Laurel Pridgen - Advisor and Family Advisory Council Co-Chair

 

Teens Talk Transition Workshop - Coming in February

The Teens Talk Transition Workshop is a 3-week online workshop designed to help youth (ages 14-19) prepare for the transition from pediatric to adult healthcare in a supportive, fun environment with their peers.


WHEN: 3 consecutive Saturdays starting February 25, 2023


TIME: 11:00am - 12:15pm


WHERE: on Zoom


REGISTER: Contact Deb Thul at 403-955-7252 or deborah.thul@ahs.ca


TRANSITION WORKSHOP FOR PARENTS–Same days from 9:30-10:45am.

Members Wanted - New Family Safety Advisory Council

Our new Family Safety Advisory Council is set to launch in March. This council will provide the patient and family perspective for the site's Safest Together work and other safety projects. Safest Together focuses on creating a strong safety culture at the hospital to eliminate hospital acquired harm. To do this well, it is important to hear from patients and families. This council will meet on the first Thursday of the month. Meetings will be from 7-9pm, online.


We are seeking youth and parents/caregivers with emergency, inpatient, and/or medical day treatment experience to join the Family Safety Advisory Council. Please email the PFCC Team to find out more.


Staff and Physicians - please share this information with any youth and/or family member who may want to get involved.

Learning Opportunities

Promoting Health Equity Through Trauma-Informed Practice and Engagement Webinar Series from Healthcare Excellence Canada - Session 1 on February 7th and Session 2 on March 7th, 10;00-11:00am.


Spirit Bears Guide to Reconciliation: Utilizing Jordan's Principle and the Spirit Bear Plan to achieve culturally based equity for First Nations Children Podcast from Children's Healthcare Conference. Available as of January 30th.


Advancing Pediatric Nutrition Care in Canadian Hospitals: An Update on the Nutrition Pathway and Malnutrition Standard - Webinar from Children's Healthcare Canada - February 8, 9am MST


Delivering High-Quality Care in Pediatric Research through Patient and Family Engagement Webinar from Children's Healthcare Canada - February 15, 9am MST