PFCC - Newsletter

You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.

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May 2019 Edition
Youth Transition Council Final Meeting
April 30th was the last formal meeting of our Youth in Transition Patient and Family Advisory Council. For the past two years, this Council has met bi-monthly to provide their input and feedback on projects related to the transition from pediatric to adult care. From the idea stage to implementation, the members had a significant impact on the development of three major pieces of work – the ACH transition pathway project, the AHS transition webpages, and the transition navigator study.

At the meeting, the group and those who consulted with them, celebrated their achievements. A display highlighted the many ways that the patient and family voice had influenced the work that was done. Members expressed their appreciation for the dedication and commitment to repeatedly get their input and use it and staff spoke about the benefits of having a group to readily access over time. As one staff member expressed – “your stories and experiences have changed my perspective”.

Members of the Council will continue to be involved as advisors on our Patient and Family Centred Care Network. They are also willing to be brought together, on an as needed basis, to consult on transition work.

We are grateful to all of the patient and family advisors who took part in this Council!
Leader Rounding is happening at ACH!
Last month, several of Alberta Children’s Hospital site operational and physician leaders rounded with patients, families, and front line staff on Units 2, 3 and 4. The leader rounding team connected with 17 patients/families and 12 staff.

 As reported by one participating leader, “it was a very positive experience. It was great providing families and staff with an opportunity to share their experiences – to celebrate our successes with them and recognize areas of improvement for even better care.” Rachelle Van Vliet, Senior Project Manager.

ACH site leaders are committed to conducting leader rounding the first Thursday of every month. Site operational and physician leaders will round on different areas within the hospital, including Inpatient Units, Outpatient Clinic areas, and the Emergency Department.

If you are interested in learning more about ACH Site Leadership Rounding, please contact
What Matters to You? Day - June 6th
What Matters to You? Day is about encouraging more meaningful conversations with the patients and families who receive healthcare, and with the staff, volunteers, and physicians who provide it.

On June 6th check out our display in the main gathering space and the children's colouring pages around the hospital.
“We can only provide the best care if we know what matters to patients and families in their healthcare journey.”
-Dr. Verna Yiu, AHS President and CEO
How Can I Participate?
How to start a conversation for Patients and Families:
  • I want to talk about...
  • it's important to me because...
  • it might help you to know...
  • i want this conversation to lead to...
  • i'm nervous this conversation will lead to...
How to start a conversation for Healthcare Providers:
  • What are things that are important to you at this moment?
  • What are some things you would like to achieve as a result of our work together today?
  • What can I do to best support you in your child's care?
  • What are your goals and wishes today and how can I help you achieve them?
  • What makes a good day?
  • What gives you hope?
  • What gives you courage?
  • There are many resources and next steps you need to take to find and put services in place for you. To help us prioritize next steps it helps us to know what is most important to you.
  • Ask open ended questions
Get Social!
Share your stories and photos on Twitter, Facebook, or Instagram using #wmtyAB. Follow @AlbertaPFCC on
Twitter to keep tabs on the movement.
In The Spotlight...
Neirreth Jonnson, Family Advisor and Peer Mentor with Family to Family Connection, accepted an invitation to be a team member for an AHS Improvement Way project. Here's her reflections on her experience.

Participating as the Family Advisor for the AHS Improvement Way (AIW): ASD Diagnostic Clinic Preschool Stream Redesign project gave me an opportunity to not only collaborate with clinicians and medical professionals, but also to observe the passion and genuine care that the ASD Diagnostic Clinic has for the families they serve. Throughout the 3-month long project, my experiences as a parent with a child with autism were shared and received with great interest. Likewise, this project provided a forum for me to share the lived experiences of other families that I have met as a peer mentor in the Family to Family Connections program.

I felt strongly that my input from both spheres was valued and regarded as important to the project. This, to me, is the very definition of patient-and-family-centered care. As a parent, I felt empowered and heard. As a peer mentor bringing forth the voices of other families, they too were also heard. It would have been easy to feel intimidated to be among a group of medical professionals, but the entire team were welcoming, appreciative and viewed me as an equal partner. It has been an honor to have had the opportunity to be a part of this project. I am thankful and humbled beyond words to have witnessed the hard work and great desire that the ASD Diagnostic Clinic has to provide families with the best possible services.  
Neirreth – front centre – with the ASD AIW Team
Strongest Families Research Project
Learning Opportunities
The Child and Youth Mental Illness Epidemic: Is it Real? Can it be Prevented?

May 29 9:00 -10:00 am MDT

"This seminar will present evidence on trends in the prevalence of child and youth mental illness and suicidality, and review recent research on health promotion strategies to reduce the burden associated with mental health. This will include discussion on whether making healthy behaviour changes such as making a child’s diet more healthy, improving parenting behaviours, or making efforts to build social support for a child could have a beneficial impact on a child’s mental health. Strategies like these can complement clinical management approaches, and give families ideas on how they may be able to be part of the informal treatment team."

Patient and Family Centered Care
Grand Rounds

June 3rd 2019 12:00 - 1:00 pm

Auditorium, Foothills Medical Centre
or via telehealth at ACH in Room B2-200.

All Staff, Volunteers, and Physicians welcome to attend

"What Matters to You is a worldwide movement putting the patient voice at the center of care, encouraging and supporting meaningful conversations between healthcare providers and the patients and families they serve.
Come hear how various teams are using the new vital sign of discovering what matters to their patients, as well as a personal story of the impact of What Matters to You."