PFCC - Newsletter

You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.

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June 2018 Edition
Survey Says ...
Based on the recent Outpatient Survey results, patients and families scored the Alberta Children's Hospital Clinics 
at a 9.3/10! 
 
From May to December 2017, 69 outpatient clinics participated in handing out surveys to their patients and families. "We wanted to capture the patient and family experience at each individual clinic and gauge how we're doing as a site" explains Jeanette Deere, ACH Project Manager
 
The survey went through multiple revisions before being launched with input from CAYAC, the Family Advisory Council and site leadership. The survey included specific questions about a patient and family's experience at a clinic appointment along with an area for comments themed into the four cornerstones of patient and family centred care: information sharing, respect, participation, and collaboration. 
 
Overall, there are a lot of areas to celebrate! "We are doing well in most areas and we see opportunity for improvement in others," says Deere. Each clinic now has its own clinic report and they are tasked with picking two areas to improve upon based on the feedback from families in their clinics. It is expected that the next outpatient survey will be conducted after the province-wide launch of Connect Care.
Facing Your Fears: An Evidence-Based Treatment Group for Youth with 
Autism and Anxiety

A new pilot research project started earlier this year at the University of Calgary, and in partnership with Alberta Health Services, the NDD Integrated Brain Health, various community agencies, and the Owerko Centre at the Child Development Centre to help children with Autism Spectrum Disorder (ASD) who experience anxiety face their fears.
 
Examples may include anxiety being away from a parent, using a public washroom, changes in routine, and making friends at school. Whatever the fear, this 14 week treatment group helps children ages 8-14 years identify fears and worries, develop strategies to overcome them, and then actually practice facing them.  
 
"Having the confidence and strategies to face fearful situations as well as working together and supporting each other is huge for these kids' progress," states Dr. Carly McMorris, Assistant Professor, Werklund School of Education, Alberta Children's Hospital Research Institute (ACHRI), University of Calgary. "Our goal is to help expand this program into other settings in Calgary to ensure that these families are receiving the support they need. We know anxiety affects many children with ASD and our goal is to continue to offer Facing Your Fears and determine its effectiveness in reducing anxiety in these kids."
 
For more information about this pilot project, please contact Dr. Carly McMorris at 403-220-5457 or camcmorr@ucalgary.ca.
Did You Know ... 
the MPOC Survey is out?

We are looking for ALL Staff and Physicians to fill out a Measures of Processes of Care (MPOC) survey by June 30! Your opinions matter! Online Survey

Or you can find a hard copy of the MPOC survey (and hand-in box) in the Family and Community Resource Centre on the second floor!
In the Spotlight ...
Retirement wishes to
Marcel Leffelaar.
Marcel Leffelaar,
Site Lead Spiritual Care Services, 
is Retiring this June!

"Over the years I have had the privilege of making incredible connections at the Alberta Children's Hospital, with patients and families, staff, and our entire community," says Leffelaar. "What a blessing it has been."

Early in his career, Leffelaar discovered that music helped foster meaningful connections with patients and families. "It helped to start a conversation, break down any barriers and opened up a way for us to have fun despite the circumstances," states Leffelaar. So, in conjunction with Philip Behman, Professional Practice Lead, Spiritual Care Services, they began to play their instruments for patients and families and it has become their "signature brand" throughout the hospital. "I'm blessed to have been part of so many journeys ... to help patients and families transcend with their grief and loss," expresses Leffelaar.

Leffelaar plans to be busy in his retirement; there is some travel in his future, spending time with family (he has four boys and four grandchildren with another one on the way), photography, and playing music are just a few of his interests.  Don't be surprised if you bump into Leffelaar on his bike this summer or on his cross country skis in the winter (he put over 700 km on them last year!). We wish you all the very best, Marcel - you'll be missed!
Upcoming Events - Mark Your Calendars!
October 17-18, 2018
AHS Quality and Safety Summit
MacEwan Conference and Event Centre in Calgary
Patient and Family Advisors are invited to attend at no charge
The Summit fills up quickly - Registration opens on June 27 at 10:00am
Quote of the Month 
Learning Opportunities

CAPHC: Wednesday, June 20, 2018 from 9-10 am
The Coach Approach: Supporting Families of Children with Disabilities

A coach or navigator approach is a new model that is now increasingly used in pediatric healthcare contexts. This webinar will provide an overview of what a coach is and the current evidence that exists in the use of a coach for parents of children with disabilities. Three research projects funded by CHILD-BRIGHT that use a coach model at three transition points in a child's development will also be highlighted. 

Your PFCC contributing writers: Juliana Harris, PFCC Liaison; Kim McLelland, PFCC Liaison; Marie McNaughton, Family and Youth Engagement Coordinator.