At the Child Health Research Rounds on December 11th, 2018, Juliana Harris, PFCC Project Manager, Krystle Heikkinen, Family Partner, and Dr. Alicia Hilderley, Researcher, had the opportunity to present:
"What can we do together? Partnering with patients and families"
This presentation reviewed the multiple different ways patients and families can be engaged in research, the importance and value of engaging patients and families in research, and explored the different challenges in engaging patients and families as research partners, as well as, strategies to overcome them.
After attending the session, Laurel Ryan, Clinical Research Manager, commented:
"The presentation was a thoughtful unpacking of the process of starting to include patients and families on the research side of our work. Involving the end users, and seeing health challenges from their perspectives can't help but improve research by making sure we are spending time on research questions that are relevant to those who live with the disease. It was valuable to know about the formal ACH engagement channels that can be leveraged and how the PFCC team can be leveraged for consults to overcome issues."
Contact the PFCC Team
to learn how to best engage patients and families in quality improvement or research projects at ACH.