PFCC - Advisors on Committees/Projects

Currently Open Advisor Positions

If you are interested in anyone of these engagement opportunities email us at achpfcc@ahs.ca or phone 403-955-2396.

The following Committees/Projects are looking for Advisors:

Pain, Agitation, or Delirium in the PICU

Advisor information:

An Alberta Children's Hospital PICU quality improvement team is looking to speak with a few parents/caregivers who have had children who have spent time in PICU that might have been agitated or confused during their stay. This might have presented as your child not knowing who you are or it took some time to recover from any sedation they were given. Or maybe it was difficult to treat your child’s pain?

Description of Opportunity:

During many admissions to PICU we are required to provide treatments to our patients that can cause pain and agitation. Historically, we kept our patients very sedated during these treatments. However through various studies we have come to learn that there are many benefits to allowing our patients to be more awake and alert during their ICU stay including less time on ventilators, less time in bed, less time in PICU, and less time in hospital. Despite our best efforts however, some patents still experience pain, agitation or delirium in our PICU. Based on published literature we have created a program to help address these issues. However, we believe that we need input from the patients and families who have suffered through PICU associated pain, agitation, and delirium.

Commitment Details:

This team is looking to conduct 30-60 minute interviews with parents/caregivers by September 15th, who have had this experience with their children.

The team will use the information provided in these interviews to ensure our program meets the needs of our patients and our families. We would also like to use the interview text/audio/video as testimonials to help provide motivation and rationale to our staff in order to provide the very best care in the PICU.

Deadline: 2018-09-10

Innovation 3D Project

Advisor information:

Alberta Children’s Hospital staff and clinicians are known for being innovative and person centred.  This is something we are proud of.  We also know we can always do better!

We would like to launch an “Innovation Challenge” where we involve clinicians, front line staff, children, youth and families to help us solve our innovation challenge.

We know that the best ideas come from the most unlikely places. 

See attachment for more information.

 

Description of Opportunity:
Commitment Details:

Total of 2-3 hrs a week from mid-September till end of October

Attend a weekly huddle of 1 hr with the small project team

Email achpfcc@ahs.ca if interested in this opportunity. 

Supporting Documents:

http://fcrc.ahs.ca/family/pfcc/advisor/docs/ACH-Innovation-Challenge_June_2018--002-.docx

Deadline: Open until the position(s) are filled.

PICU Construction Committee

Advisor information:

Has your child had experience in ACH's Pediatric Intensive Care Unit (PICU)? If so, ACH is looking for 1-2 Patient and Family Advisors to be part of the PICU Construction Committee. 

Description of Opportunity:

The ACH PICU Construction committee is tasked to redesign the PICU patient rooms and corridors as well as oversee the required floor repairs. We are looking for Advisors to provide input to the changes that are going to take place in this Unit. 

Commitment Details:

Anticipated meetings - every 2 weeks. Meetings will be held during normal business hours. 

Deadline: Open until the position(s) are filled.

Patient/Parent Partner - Asthma KidsPro System Development

Advisor information:

Alberta Health Services is shifting towards a culture of delivering patient and family-centered care. Integration of Patient-reported outcomes (PROs) improves patient-centered outcomes by collecting information from patients and caregivers about their symptoms, treatment effects, and their experiences with the care they receive. PROs are not routinely incorporated in current pediatric clinical care practices clinical practice in Alberta. To fill this gap, we aim to develop the KidsPRO system, an innovative healthcare information solution for Asthma which is the most common chronic disease among children.

We are looking for the Patient Partners to develop the KidsPRO system, an innovative healthcare information solution that will support and facilitate the integration of Patient-reported Outcomes (PROs) in routine care of children suffering from asthma, evaluated in Alberta Children’s Hospital (ACH) out-patient clinics.

We are interested in recruiting pediatric patients who is:

  • In one of these age groups: (8-9,10-12,13-15, 16-18)
  • Living with asthma in the community
  • Able to attend meetings
  • Able to listen well and enjoy working with others
  • Able to attend supportive education and skill-building sessions that prepare him/her for this partnership
  • Willing to talk about his/her own experience of living with asthma, to help develop KidsPRO

We are interested in recruiting family caregivers who is:

  • The family caregiver of asthmatic patient in one of these age groups (8-9,10-12)
  •  Able to attend meetings
  • Able to listen well and enjoy working with others
  • Able to facilitate communication between researchers, other team members and the child he/she is caring for
  • Able to attend supportive education and skill-building sessions that prepare him/her for this partnership
  • Willing to talk about his/her experience of caring for asthmatic pediatric patient, to help develop KidsPRO
Description of Opportunity:

For more information see link below

Commitment Details:

For more information see link below

Supporting Documents:

http://fcrc.ahs.ca/family/pfcc/advisor/docs/Patient-Partner-for-Asthma-Project.docx

Deadline: Open until the position(s) are filled.

Provincial Improvement Project: Pediatric Eating, Feeding, and Swallowing Services and Programs

Advisor information:

We are looking for patients and parents/caregivers who have experience with eating/feeding and/or swallowing issues to participate in a world café event with other healthcare providers and physicians for the purpose of improving services and programs.

More information about type of experience the project team is looking for from patients and families:

  • Child who has had a g-tube/j-tube/ng-tube or has received interventions and care to avoid getting a tube (i.e. thickeners, assistance from the multidisciplinary team: Speech Language Pathology / OT, Dietitians, Nursing, etc…)
  • Child has known or suspected feeding & swallowing concerns (tube and/or orally fed)
  • Child has moved away from tube-feeding to oral feeding

 

Description of Opportunity:

Patients and family members will join healthcare professionals in small group discussions to provide input to current experiences related to pediatric eating, feeding, and swallowing services and programs which will help inform improvement efforts. 

Commitment Details:

October 2nd - time to be determined (4 hours) 

If you are not able to participate on this day but would like to provide some input and feedback about your experiences please let us know.

Deadline: Open until the position(s) are filled.

All successful Advisor applicants will need to be registered through Alberta Health Services Volunteer Resources which will include completing a criminal background check, signing a confidentiality agreement and a media release form (optional). The PFCC team will help facilitate this process.