Info
RxCystic Fibrosis
Cystic Fibrosis is a genetic disease that mainly impacts the lung and digestive system. Those affected produce thick sticky mucus that can clog the lungs, stomach, intestines, liver, pancreas, and reproductive organs.
Web Content
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Cystic Fibrosis Canada
Cystic Fibrosis Canada aims to help those with CF. You can learn about cystic fibrosis, join the My CF Network, or connect with your local chapter.
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My Health Alberta
My Health Alberta has detailed peer reviewed information that you can access by searching Cystic Fibrosis.
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About Kids Health
This overview from the Sick Kids Hospital provides the basic information you should know about CF.
aboutkidshealth.ca/en/healthaz/conditionsanddiseases/geneticdisorders/pages/cystic-fibrosis-cf.aspx
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Kids Health
Kidshealth.org has a lot of CF information for kids, teens, and parents. Be sure to check out the More on This Topic box for tips, recipes, and more.
Book List
These resources are available to borrow in the Family Library. You can also check with your local library to see if they are available.
You can download, print, and share this PDF, or our Destiny Collection List.
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Cystic Fibrosis : A Guide for Patient and Family
This all-encompassing guide provides practical advice for managing cystic fibrosis.
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Cline and Greene have created this guide to help parents through the struggles of raising a child with a chronic condition.
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Cystic Fibrosis: The Ultimate Teen Guide
Written for teens with input from real teens this book mixes research and personal experience to give teens all the information they need and more to manage a life with CF.
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Sixty-Five Roses : A Sister's Memoir
In her memoir, Cariou shares the experiences she had growing up with her sister, who had cystic fibrosis.
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The Power of Two : A Twin Triumph Over Cystic Fibrosis
Twins Isabel and Anabel were both diagnosed with cystic fibrosis. Their story and the impact on themselves and loved ones is portrayed in this book.
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The Power of Two : A Twin Triumph Over Cystic Fibrosis
Twins Isabel and Anabel were both diagnosed with cystic fibrosis. Their story and the impact on themselves and loved ones is portrayed in this book.
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Frank Deford shares his daughter Alex's story of cystic fibrosis from a father's perspective.
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Little Brave Ones : For Children Who Battle Cystic Fibrosis
Lux gives readers an inside look at what life is like with cystic fibrosis.
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Kory is a normal kid who loves to do kid things. He also has cystic fibrosis - but he knows how to take care of himself and have fun every day!
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Written for pre-school aged children, Cadberry's Letters introduces children to life with cystic fibrosis.
Contributors
Thank you to our friends from the Pediatric Cystic Fibrosis Clinic at the Alberta Children's Hospital.
Current as of: Aug 21, 2023