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Tuberous Sclerosis

Tuberous sclerosis (TOO-buh-rus skluh-ROH-sus) is a genetic disorder that can cause noncancerous tumors to form in many parts of the body. With TSC, tumors can develop in the brain, eyes, kidneys, heart, lungs, bones, or skin.

Websites

Book List

These resources are available to borrow at the Family & Community Resource Centre. You can also check with your local library or with The Alberta Library for the availability of these resources.

You can download, print, and share this list.

  • My Life with TSC

    Evan Moss (2014)

    Written and illustrated by 10-year-old Evan Moss, My Life with TSC shares his story. He details the daily challenges his faces living with tuberous sclerosis complex.

  • Princess Katie the Brave: a Story about Living with TSC

    Jennifer Flinn (2014)

    A young happy princess named Katie has TSC. Sometimes she feels different because she goes to the doctor and hospital more often than the other princes and princesses in her kingdom. As Princess Katie learns more about her condition she meets other princes and princesses who also have TSC. She soon discovers that she is not alone and that she doesn't have to feel weird just because she has special needs.

  • My Life and Thoughts with Tuberous Sclerosis Complex

    Robin Marie Hudson (2015)

    This book was written by a young woman living with tuberous sclerosis complex. Diagnosed at 7 months, she has faced many struggles including brain surgery. This story focuses on her life and how she has coped with TSC.

Contributors

Thank you to our friends from the Clinical & Metabolic Genetics Program the Alberta Children's Hospital for their contributions.

Disclaimer

This material is designed for information purposes only. It should not be used in place of medical advice, instruction and/or treatment. If you have specific questions, please contact your doctor or appropriate health care professional.

For more information contact the Child Health Information Specialist at 403-955-7745 or