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NICU / Premature Babies

Premature babies are born before 37 weeks of pregnancy, before they are fully developed. Preemies are often cared for by a specialized team in the Neonatal Intensive Care Unit (NICU). Below is a list of resources that can be helpful for parents with a premature baby or for families with a child in the NICU.

Web Content

Government Information

Alberta
Canada
  • Canadian Premature Babies Foundation

    The Canadian Premature Babies Foundation aims to support and educate Canadian families with premature babies before, during and after their NICU stays. The information for families covers Peer Support, What You Can Do in the NICU, Fathers of Premature babies, and Neonatal Follow Up. It also has podcasts that cover a wide range of topics.

    cpbf-fbpc.org

  • About Kids Health

    Canadian medical information resource by the SickKids Hospital in Toronto, Ontario. Their website has an information section all about premature babies. It covers basic information about premature babies, understanding different premature diagnoses, treatment overview, preemies at home, and looking ahead. It has information in different languages including French, Chinese (Simplified), Chinese (Traditional), Portuguese, Spanish, Urdu, Tamil, Arabic, and Punjabi.

    aboutkidshealth.ca/prematurebabies

  • Caring for Kids

    The resources has information for parents from Canada’s pediatricians. This website doesn’t have specific information on premature babies, but it does cover a wide range of child health information and child health concerns. It has information on children from newborn to teenagers.

    caringforkids.cps.ca/

Other Helpful Websites

  • CDC’s Developmental Milestones

    Explains stages of a child’s development. While this can vary from child to child the website lists what skills an average child can do at different age ranges. Skills such as taking a first step, smiling for the first time, and waving “bye bye” are all developmental milestones. These milestones can involve physical, social, emotional, cognitive, and communication skills. This US resource lists the typical developmental milestones for children aged 2 months to 5 years.

    cdc.gov/ncbddd/actearly/milestones/index.html

  • Hand to Hold

    A US organization that has information for families with premature babies. The website has a blog, podcasts, online communities, online peer mentoring and sibling support. The resources cover topics like NICU Now for parents with babies in the NICU, NICU Dads, NICU Love & Loss for those grieving a loss, and Beyond the NICU for once you’re home with your baby. < br/>Because this is a US resource not all information will be relevant for Alberta families.

    handtohold.org/

  • Baby Steps to Home

    A US guide to prepare NICU parents for home. It covers a wide range of topics such as breastfeeding overview, safe sleep, parenting in the NICU, developmental care, and preparing to take your baby home. You can either access the information from the website or you can download the NICU discharge module. < br/>Because this is a US resource not all information will be relevant for Alberta families.

    babystepstohome.com/

  • The Mayo Clinic

    The Mayo Clinic is a trusted source for medical information. It does not have a specific Neonatal section but you can search for neonatal health conditions and find other health information you might need when your baby is the NICU. It does have a section on premature birth that is very informative.

    mayoclinic.com

  • March of Dimes

    Provides families with general information about the NICU. It includes Dad’s role, common tests, coping with stress, learning your baby’s cues, and touching and holding your baby. < br/>Because this is a US resource not all information will be relevant for Alberta families.

    marchofdimes.org/complications/the-nicu.aspx

  • Kid’s Health

    A US resource with trusted medical information. It covers information for parents on when your baby’s born premature, when your babies in the NICU, and taking your preemie home. For more information you can search for other neonatal health conditions or concerns. This information is available in audio and Spanish language. < br/>Because this is a US resource not all information will be relevant for Alberta families.

    kidshealth.org/

Book/DVD List

These resources are available to borrow at the Family & Community Resource Centre. You can also check with your local library or with The Alberta Library for the availability of these resources.

You can download, print, and share this list.

Contributors

Thank you to our friends from Neonatal Follow Up Clinic, Alberta Children’s Hospital NICU Team, Alberta Children’s Hospital Lactation Consultants, Karen Lasby, The Calgary Zone NICUs Parent Education Pathway Committee, and Calgary Public Library for their contributions.

Disclaimer

This material is designed for information purposes only. It should not be used in place of medical advice, instruction and/or treatment. If you have specific questions, please contact your doctor or appropriate health care professional.
No copyright infringement is intended.

For more information contact the Family Librarian at 403-955-7745 or