Info
RxCeliac Disease

Celiac disease (sometimes called sprue or coeliac) is an autoimmune disorder where consuming gluten (found in wheat, barely, and rye) damages the small intestine. About 1% of people have celiac disease.

Web Content

Local Support Groups

• Canadian Celiac Association

  The Canadian Celiac Association advocates for those with celiac disease. Calgary and Edmonton both have chapters that provide a newsletter and events.

  celiac.ca/

Information about Living with Celiac Disease

• GI Kids - Celiac Disease

  The North American Society for Gastroenterology, Hepatology & Nutrition has general information about celiac disease and information in this video.

  gikids.org/content/3/en/celiac-disease

• Celiac Disease Foundation

  An explanation of celiac disease and its symptoms are found on this page.

  celiac.org/

• Gluten Intolerance Group

  Gluten Intolerance Group has a post diagnosis guide called Getting Started as well as lifestyle tips.

  gluten.org/

• Beyond Celiac - Living with Celiac Disease

  Making the necessary transitions after a diagnosis of celiac disease can be difficult. This page provides tips for how to make the changes.

  beyondceliac.org/living-with-celiac-disease/

• Beth Israel Deaconess Medical Center - Celiac Center

  Patient education materials are found on this page.

  bidmc.org/centers-and-departments/digestive-disease-center/services-and-programs/celiac-center

• Shelly Case - North America's Gluten-Free Nutrition Expert

  Shelly Case is a Registered Dietitian and Celiac disease expert as well as a member of national advisory boards in both Canada and USA. Her site provides gluten free resources.

  shelleycase.com/

Gluten Free Recipes and Nutrition

• Beyond Celiac - The Gluten Free Diet

  A diet free of gluten is the only way to manage celiac disease. The page provides a guide to the gluten free diet, and includes information on reading food labels, eating a balanced diet, recipes, and answers from a dietitian.

  beyondceliac.org/gluten-free-diet/overview/

• GI Kids - Gluten Free Diet Guide for Families

  GI Kids has a gluten free diet e-book free for families to use.

  gikids.org/files/documents/resources/Gluten-FreeDietGuideWeb.pdf

• National Celiac Association

  Make a meal plan and find gluten free recipes on this page from the National Celiac Association website.

  nationalceliac.org/gluten-free-recipes/

• Gluten Free Resource Directory

  This frequently updated guide lists gluten free items from food to cosmetics.

  glutenfreeresourcedirectory.com/

For Kids and Teens

• Beyond Celiac - Information for Kids

  This page was built specifically for kids with celiac disease. There are tips for talking to other kids about celiac disease and recipes too.

  beyondceliac.org/living-with-celiac-disease/kids/

• Gluten Free Kids

  Free membership is offered to children from gluten.org. Membership includes a subscription to Generation GF magazine. It features stories, games, and interviews with other gluten-free kids, teens, and young adults.

  gluten.org/kids/

En Francais

• Fondation Québécoise de la Maladie Coeliaque

  A Quebec French Celiac resource that has information on Celiac Disease and living a gluten-free lifestyle.

  fqmc.org/

Book List

These resources are available to borrow in the Family Library. You can also check with your local library to see if they are available.

You can download, print, and share PDF or our Destiny Collection List.

• 

  Gluten Free : The Definitive Resource Guide

  Shelly Case (2016)

  Case's book is full of practical information about the gluten free diet for consumers, health professionals, chefs, food manufacturers or anyone else who needs accurate information about this complex diet.

• 

  Complete Gluten-Free Diet and Nutrition Guide : With a 30-Day Meal Plan and Over 100 Recipes

  Alexandra Anca (2010)

  This guide book provides information about celiac disease, managing symptoms, gluten, and provides recipes.

• 

  Eating Gluten-Free With Emily : A Story for Children With Celiac Disease

  Bonnie J. Kruszka (2008)

  This fictional story about a girl named Emily is based on the real-life experiences many children face after being diagnosed with celiac disease. She learns that having celiac disease is only a part of who she is - she also likes to jump rope, paint, tell jokes, and pick flowers.

• 

  The Gluten Glitch

  Stasie John (2012)

  Gideon is fed up with eating gluten-free. Even though he has special treats available he still feels left out and wants the treats the other kids have. This children’s book addresses coping with celiac disease, including the difficult feelings that come along with being different.

Contributors

Thank you to our friends from Nutrition Counselling and Pediatric Gastroenterology (GI) Clinic at the Alberta Children's Hospital and South Health Campus for their contributions.

Current as of: Sept 14, 2022