Tuberous sclerosis (TOO-buh-rus skluh-ROH-sus) is a genetic disorder that can cause noncancerous tumors to form in many parts of the body. With TSC, tumors can develop in the brain, eyes, kidneys, heart, lungs, bones, or skin.
Kids Health - A to Z Tuberous Sclerosis
An article for parents with basic information on Tuberous Sclerosis.
Tuberous Sclerosis Canada - Living with TSC
TS Canada is a voluntary, non-profit, charitable organization that was established in 1990 to provide awareness and support for individuals with TSC and their families. This article is a brief introduction to living with TSC.
Tuberous Sclerosis Complex international - What is TSC
Tuberous Sclerosis Complex International (TSCi) is a consortium of organizations that support individuals with TSC around the world. This article give a full run down explaining what Tuberous Sclerosis is, how it’s diagnosed, and what to expect after a diagnosis.
Tuberous Sclerosis Association - Facts Sheets
A number of factsheets on Tuberous Sclerosis Complex and its related conditions.
The National Organization of Rare Disorders article on Tuberous sclerosis. Includes in depth information on symptoms, diagnoses, and treatments.
GARD tries to provide access to current, reliable, and easy to understand information about rare or genetic diseases. This is their summary of Tuberous Sclerosis.
Orphanet aims to provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders. This is their article on TSC.
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Written and illustrated by 10-year-old Evan Moss, tells the story of what it's like to live with tuberous sclerosis complex (TSC). Evan takes a whimsical approach to explaining the daily challenges he faces. He takes a serious topic, infuses his own sense of humor and wit and leaves the reader with a smile on their face and a sense of hope.
The story centers on a young, happy princess, Katie, who has TSC and feels different because she goes to the doctor and hospital more often than the other princes and princesses in her kingdom. As Princess Katie learns more about her condition she meets other princes and princesses who also have TSC. She soon discovers that she is not alone-and that she doesn't have to feel weird just because she has special needs.
This book was written by a young woman living with Tuberous Sclerosis Complex. Diagnoses at 7 months, she has faced many struggles including bran surgery. This story focuses on her life coping with TSC.
Thank you to our friends from the Alberta Children’s Hospital for their contributions.
This material is designed for information purposes only. It should not be used in place of medical advice, instruction and/or treatment. If you have specific questions, please contact your doctor or appropriate health care professional.
For more information contact the Child Health Information Specialist at 403-955-7745 or email@example.com