Tuberous Sclerosis

Tuberous sclerosis (TOO-buh-rus skluh-ROH-sus) is a genetic disorder that can cause noncancerous tumors to form in many parts of the body. With TSC, tumors can develop in the brain, eyes, kidneys, heart, lungs, bones, or skin.


Recommended Resources

These resources are available to borrow at the Family & Community Resource Centre. You can also check with your local library or with The Alberta Library for the availability of these resources.

You can download, print, and share this list.

  • My Life with TSC

    Evan Moss (2014)

    Written and illustrated by 10-year-old Evan Moss, tells the story of what it's like to live with tuberous sclerosis complex (TSC). Evan takes a whimsical approach to explaining the daily challenges he faces. He takes a serious topic, infuses his own sense of humor and wit and leaves the reader with a smile on their face and a sense of hope.

  • Princess Katie the Brave: a Story about Living with TSC

    Jennifer Flinn (2014)

    The story centers on a young, happy princess, Katie, who has TSC and feels different because she goes to the doctor and hospital more often than the other princes and princesses in her kingdom. As Princess Katie learns more about her condition she meets other princes and princesses who also have TSC. She soon discovers that she is not alone-and that she doesn't have to feel weird just because she has special needs.

  • My Life and Thoughts with Tuberous Sclerosis Complex

    Robin Marie Hudson (2015)

    This book was written by a young woman living with Tuberous Sclerosis Complex. Diagnoses at 7 months, she has faced many struggles including bran surgery. This story focuses on her life coping with TSC.


Thank you to our friends from the Alberta Children's HospitalĀ for their contributions.


This material is designed for information purposes only. It should not be used in place of medical advice, instruction and/or treatment. If you have specific questions, please contact your doctor or appropriate health care professional.

For more information contact the Child Health Information Specialist at 403-955-7745 or