PFCC - Newsletter

You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.

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November and December 2018 Edition
Seasons Greetings from the ACH PFCC Team

We're catching our breath around here and have combined our November and December newsletters. 

Our team wishes you all the best as we head into this holiday season. May you have a peaceful and enjoyable time with family and friends.

Pam Kai (Peer Mentor) and Jan Lind (NICU Staff)
at the NICU Tea and Talk Christmas Event

Around ACH there are many signs of the season as many extra efforts happen to make it a fun and meaningful time for our patients and families. Just one example was the special event at the ACH NICU's December 5th Tea and Talk where personalized Christmas ornaments were made by family members.  

Tea and Talk happens twice a month in the ACH NICU.  A Peer Mentor from Family to Family Connections partners with a staff member of the NICU to host these sessions for families with babies in the NICU. There's usually a short education session and then time to talk with the peer mentor and each other. These informal conversations help to create peer support and build parents' confidence as they care for their baby in the NICU environment.
Have you seen CAYAC's new video?

Have you every wondered what the Child and Youth Advisory Council actually does? Check out their latest video which answers the Who, What, and Why of CAYAC. 

PFCC Week 2018 Summary

Our 7th Annual Patient and Family Centred Care Week happened November 5th to 9th. The theme this year was "Care is a Family Affair". Patients, families, staff, and volunteers had a variety of opportunities to participate in the week and reflect on what the theme means to them.
We have highlighted many of these events and activities below.
Many thanks to the PFCC Week Working Group for making this week happen and to all of the patients, families, staff, and volunteers who participated.

PFCC Week Kick-Off - Monday, November 5

To help kick off PFCC Week, we had 16 patients, families, and staff members participate in a rendition of "We are Family" to a full cafeteria. Thank you to everyone who participated! Special thanks to Heath and Pam Kai, parents of ACH, for choreographing and leading this special event and Margaret Fullerton, ACH Senior Operating Officer, for playing the piano.
We followed this up with handing out over 360 pieces of cake.

Jan Lind, Lori Stephen, and Kelsey Monson receive the trophy on behalf of their NICU team

Care is a Family Affair Team Challenge, and the winner is...

We encouraged ACH staff, advisory councils and patients/families to put together a team to decorate an 8 x 10" wooden picture frame to reflect what Care as a Family Affair means to them. We provided the frames and the teams provided the creativity and supplies. We had 34 submissions and once again each team made it challenging for our judges and for people to vote for their favourite.

Congratulations to the NICU for their winning entry. A close second and runner-up winner was the Health Information Management team with their "Efflorescence" entry. 

"Our frame represents family as an essential part of the neonatal team. Family lifts the baby up and supports them through their NICU journey and beyond. Family is not defined by colour, gender, or race, just parents or caregivers with hearts full of love. The pebbles represent the positive impact of a family presence and are stepping stones to home!"

Displays and Activities

In the Main Gathering Space we hosted  displays and activities for patients, families, staff, and volunteers to review and/or participate in. They included information on ACH's Commitment to Comfort program, awareness about the different resources that are available to support families, and a poster highlighting evidence based research that supports "Why Family Presence Matters".

People were encouraged to indicate where in the world they have family, which resulted in a map of connections. Children were given an opportunity to use various art supplies to create a picture of their family, recognizing that families can be made up of people who are related to you or can be people who are important to you.

What does "Care is a Family Affair" mean to you?

Staff, patients, and families were asked to bring our tree to life by sharing "What Care is a Family Affair" means them. Here's a few of their thoughts:

Working together as TEAM. Family is a part of that team. 

Healthcare team asking us what matters to us as a family. 

Safety and Support. Knowing everyone's opinions counts. 

Families are directly impacted by the care provided to their child. 

Having someone you know by your side while you are in a strange place. 

Empowering families to advocate for their children.

Welcoming family always.

Partnership. Empathy. Equity. 

Care is a Family Affair Champions

We asked patients, families, and caregivers to help us recognize staff for the moments where they have supported family involvement, recognized the diversity and uniqueness of your family, or involved family as vital partners in care. We handed out 60 buttons throughout the site to celebrate these nominees.Here are just three of the many wonderful staff members who were recognized: Timi Abiola (Nursing Student on the Mental Health Unit), Dr. Mary Brindle (Physician), and Linda MacLaren (Genetics Counselor).

Timi Abiola
Dr. Mary Brindle
Linda MacLaren
Thanks for Caring for ACH Families Walkabout

Patients and families joined a site leader/manager on walkabouts throughout the hospital to thank staff for caring for ACH families and to give them a candy package. 1063 packages were distributed throughout the hospital. 

Make sure to watch the adorable facebook videos of Sawyer and Quin on their walkabouts. Together these videos have had almost 10K views! 
PFCC Week Celebration - Friday, November 9

Rod Neader and Care is a Family Affair Champion, Patty Knox
Our week closed with a noon hour celebration honouring all of 
our Care is a Family Affair Champions and announcing the winner and runner-up of the frame team challenge. Thank you to Rod Neander, ACH Parent, who shared with all of us his wonderful nomination of Patty Knox, ACH Cardiology Nurse. 

Thank you to Jan Lind, NICU Nurse Clinician, and Pam Kai, ACH Parent for co-chairing the celebration event.

Quote of the Month