PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to firstname.lastname@example.org.
Welcome to the April edition of Together We're Better.
National Volunteer Week
We are privileged to work with so many AMAZING Patient and Family Centred Care volunteers at the Alberta Children's Hospital!
Over the past year (April 2015 - March 2016) 154 volunteers have contributed a total of 2645 hours to our engagement work. This represents a dramatic increase from the previous year:
- 63% increase in patient and family advisor volunteers
- 3 times PFCC Networkvolunteer hours
- 9 new committees with patient and family advisors
- 44% increase in e-newsletter subscriptions
Thanks to all of our volunteers for contributing your experience to help improve the quality of care and health outcomes for all patients at ACH.
Making a Difference: A Look at Four of Our Volunteers
Family Advisory Council and PFCC Network
Originally from Zimbabwe, Tapuwa Chinhengo and her husband greatly appreciate the Canadian Healthcare system because of their own personal experiences.Having spent time in the NICU with her twin boys in 2010 and then later in the ACH Neonatal Transition Clinic, Tapuwa is grateful for the support group that helped her through a difficult time.
It's so nice to be understood and to talk to someone who has been through something similar, comments Tapuwa.
For Tapuwa it was a natural progression to begin volunteering with Patient and Family Centred Care as a way to give back.
At first it was just looking over documents and such because I was busy with my boys. But it's so important… we're the ones in the clinics and in the ER, we're the ones that need to process the information and how it's presented is important. What parents think matters.
Tapuwa helped to develop the new Family Advisory Council and is a founding member.
I'm constantly blown away by what people have gone through and are still so willing to give back. I'm humbled and in awe.
With regards to the Council's consultations she notes that
some may think that certain things are contrite in a hospital setting (like menu plans), but anything that can make our child happy at the hospital and is easier for the parents is worth it!
It's a beautiful thing for me to be a voice for other parents in the healthcare system.
Child and Youth Advisory Council (CAYAC)
When Jessica was in the hospital with her sister she was ecstatic to see the whiteboards up and being used at the Alberta Children's Hospital.
We did so much work on that consult with the Child and Youth Advisory Council (CAYAC) and I was so proud to tell my sister all about it! I love that there's so much follow-through with the consults we work on, it makes me feel valued and heard, shares Jessica.
Now a high school junior, Jessica Havens, has been a CAYAC member since grade 7.
My Dad encouraged me to apply, he figured that volunteering was maybe my way of making something out of all my visits to the hospital. And, he was right! states Jessica.
Volunteering with CAYAC has literally helped me become who I am. I have aspirations to go in to healthcare as a profession, I know how to public speak, advocate for myself, write formally and above all, I have created my own identity. Being a triplet, Jessica understands how difficult it can to be to stand out on your own.
CAYAC meets six times a year where youth work through consults. They're given a topic and asked for their input and/or feedback - it is an integral part of Patient and Family Centred Care.
I love that the youth voice is actively sought out. I wish I could do all my school work like our consults -- I massively enjoy it! exclaims Jessica.
Above all, Jessica loves the people she gets to meet with her volunteering and that there is a place where she can learn and contribute.
It's incredible to see that the youth voice is valued and used to create something tangible in the hospital.
Caroline and Stuart Muirhead
Family to Family Connections
For Caroline and Stuart Muirhead, volunteering as a couple has tremendous benefits.
Other dads like to see another dad and hear the male perspective about what life is like with a child on the Autism Specturm, shares Stuart.
We share with parents that have just had an Autism Diagnosis that no matter the challenge, what your child needs the most is you sticking together and unified. Your child needs you to be a team.
The Muirheads have been PFCC volunteers for three years; they participate in the After Autism Spectrum Diagnosis meetings held once at month at the Child Development Centre and also connect one to one with families. "
We became volunteers as a way to pay it forward, comments Caroline.
We were very fortunate to have a friend guide us through the process on what to do after our son was diagnosed. It was a challenging time and also very confusing.
Many parents don't realize how strong their voice is in their child's care and therapy.
Through examples, we can show families their options, what funding is available and we know what it's like to go through it all. We understand it's tough, we've been going through many of the things you are going through. We are here to listen says Caroline.
The best part about volunteering is giving people a little bit of hope. Knowing that you've made a difference by sharing your story and providing examples of some of your challenges and how you've overcome them is amazing inspiration.
AHS Staff - Please Complete PFCC Survey by May 1st
We are conducting an evaluation of Patient and Family Centred Care at ACH and would appreciate the input of ALL staff and physicians. Your feedback will help plans for improvement and measure our progress. The survey can be completed online or you can pick up a paper copy from the Family and Community Resource Centre on the second floor. The survey has also been sent to a random sample of families.
In This IssueFeature Volunteers
Feature Volunteer: Tapuwa
Feature Volunteer: Jessica
Feature Volunteers: Caroline and Stuart
Camp Independence 2016
(12-19 years old)
A one-week intensive summer program designed to build independence and create success for youth with mild to moderate disabilities as they transition into adulthood!
- July 18-22 - Ages 16-19
- July 25-29 - Ages 14-16
- Aug 8-12 - Ages 12-15
Please contact Gwen Roberts at 403-955-7046 or email@example.com
Learning From The Best: President's Speaker Series
Andy Jones, caterer and past chair of the UK's Hospital Caterers Association, will discuss hospital-based malnutrition
Wed., April 27
Noon to 1:00 PM
Attend via Telehealth across the Province
Change Day Update
Over 6000 people submitted pledges for the first Alberta Change Day on April 4.
Here are some of the pledges from our leaders at ACH.
I pledge to…
spent more time in clinical units and programs to experience patient care here at ACH.
think about improving patient and staff safety daily.
continue supporting patient focused Quality Improvement work.
meet regularly with patients and families to hear their healthcare story to help identify improvements.
improve access to Ambulatory Services for patients and families at ACH.
Say Yes to the Less
Friday, April 22 9:00 - 10:00 AM
Immunization - Beyond Coverage Monitoring and the Role for Paediatric Health Centres
Wed, April 27 9:00 - 10:30 AM
Providing peer support for families of children with complex needs: A best practice toolkit
Wed, May 4 9:00 - 10:30 AM
The Power of Peer Support: Improving outcomes in the NICU with a breastfeeding peer counselor program
Wed, May 11 9:00 - 10:30 AM