PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to email@example.com.
Welcome to the December edition of Together We're Better.
Me Too: A Little Love Goes a Long Way for Families in NICU
"It's hard enough to be in NICU at the best of times, it's especially tough for families over the holidays," comments Garrity Beales, a former ACH NICU parent.
"I started doing Christmas stockings at the Alberta Children's Hospital in 2013 as a way to give NICU parents some love and to provide them with a few necessary and fun items they would need during their stay in NICU. Sometimes just knowing that other people have been where you are is very comforting and you don't feel so alone," shares Garrity.
The same year,Carrie-Lynn Sedore was doing something very similar for NICU parents at the Rockyview Hospital. Garrity joined forces with Carrie-Lynn and today the group has over 100 volunteers who hand-make each "stocking" for each NICU family at ACH, Rockyview Hospital and Foothills Hospital.
In addition to the stockings, NICU Family Care receives generous donations from grocery stores and they fill each parent lounge with food and drinks to help families celebrate the holiday.
"To go from 2 volunteers to over 100 in only a few years is incredible! It really solidifies the need for NICU parents to give back and that there is a demand for what we are doing," comments Garrity.
For more information about NICU Family Care and how to get involved, please visit their Facebook page.
Family Advisory Council to Debut in January 2016!
We are excited about the terrific group of family members who have stepped forward to form our new Family Advisory Council. Their inaugural meeting is on January 19th.
ACH staff are invited to book a consultation with this group at one of its monthly meetings. You should consider accessing this Council whenever you would benefit from the input and feedback of families - you may want to brainstorm ideas, discuss options, or review work in progress with the members. Our PFCC team will help you figure out when and how to engage the Family Advisory Council.
There are still a few spots left on the Council for family members to join. Please tell people about this opportunity and ask them to email their interest to ACHFCC@AHS.ca.
Empowering Albertans to participate in improving their own health and wellness
Patients and their families are at the centre of everything we do and every decision we make.
The AHS Patient First Strategy has identified 19 approaches to support patient and family centred care (PFCC) across our province. Priority has been given to nine of these approaches to be implemented starting in the spring of 2016. "These approaches will leverage the great PFCC work already underway across Alberta Health Services, and help spread best practices," says Dr. Verna Yiu, Co-chair of the Patient First Steering Committee
Story from PFCC Week
A 15-Year-Old's Journey with Kidney Disease
"I was diagnosed with Chronic Kidney Disease in November 2011. I got a kidney transplant from my Dad on August 11, 2015. I loved that my Dad was able to stay here with me. Knowing he was in the same hospital as me made me feel less worried about my Dad. Before my transplant I had both kidneys removed and was on dialysis for two months. My doctors and nurses were there to answer any questions my family and I had. I still have to come here quite a bit but at least I get to come somewhere bright and cheerful! My doctor's took the time to get to know my family and I, making the time spent here better since I actually have a relationship with the people trying to better my health."
A story from PFCC Week
How to Find Your Voice
Strategies on how to feel more comfortable when speaking in a small or large group
During a recent CAYAC meeting, we asked our youth volunteers to come up with some advice and strategies on how they get more comfortable when speaking in a small and large groups. Here's what they came up with:
- Try to be confident
- Have a partner
- Respect the person whose speaking
- Get to know everyone
- Start off with smaller groups and then big groups
- Practice: in front of people you're comfortable with
- Team-building activities
- Knowing what is expected of you
- See what works for you - not everything works for an individual
- Deep breaths
- Don't over-think
- Keep yourself engaged
- Get comfortable with your audience
- Be informed - makes it easier to answer questions, lead a group discussion
- Knowing the space you'll present in
- Cue cards with main points - elaborate as you go
- If you know a person, try focusing on them
In This IssueNICU Stockings
NEW Family Advisory Council
Patient First Strategy
PFCC Week Story
Family Members Needed
The Hematology Oncology Transplant (HOT) Patient and Family Centred Care Steering Committee is seeking family members with experience in oncology or hematology to join their committee. This steering committee provides a forum for families and healthcare professionals to collaborate as partners in care to support, promote, guide and advance Patient and Family Centred Care in the HOT program. This committee meets the third Thursday of the month from 11:30 AM - 1:00 PM.
Please email firstname.lastname@example.org if you'd like to explore this opportunity.