PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to email@example.com.
Welcome to the November edition of Together We're Better.
Courage Comes in Small Packages
"My blood is sick and every time I need a needle, I get a special bead for my necklace," shared Addison Willis at her special helper day at preschool this fall.
Addison Willis is 3 ½ years old and has Congenital TTP (a rare blood disorder that causes the body to produce blood clots). She and her family have been in and out of the Alberta Children's Hospital since her birth.
To help kids like Addison who have a serious illness, the Beads of Courage program was launched in 2012 as a way to help children record, tell and own their story of courage through beads. With over 40 blood infusions and 300 needle punctures, this little girl has many reasons to share her story with her classmates!
"I cannot say enough about how great this program is for the kids! It really documents Addison's journey so far and gives her courage. She just loves her necklace," says Mom Jennica Willis.
For more information about the Beads of Courage program, click here.
Look for Addison's Full Story on the FCRC Website in the near future!
Family Advisory Council
We're excited to announce that a new ACH Family Advisory Council will make its debut in January 2016!
Similar to CAYAC, our Child and Youth Advisory Council, the Family Advisory Council will consult with ACH staff to provide a family voice for the work of the hospital. It will complement our existing engagement strategies and help to meet the increased demand we are experiencing for opportunities to get family input and feedback. The new Council will meet once a month in the evening from 7:00 - 9:00 PM.
We are seeking parents and family members of children who are currently accessing services at the Alberta Children's Hospital to join the Council.
Family Members - Please email us if you are interested.
Staff - Please tell family members about this opportunity and encourage them to contact us at ACHFCC@AHS.ca.
Story from PFCC Week
Hi! My name is Kira ...
"When I was 7, I started to have a limp. I didn't think it was anything bad, I thought it was a growing pain. It happened for a week. And I thought that was pretty long for a growing pain so Mommy took me to our family doctor. He sent me for X-rays and that's how our story began.
I found out I had cancer, Osteosarcoma--the same kind as Terry Fox. Osteosarcoma is a kind of cancer that's in the bone. It happened in my leg, my knee and above. But it wasn't in my foot. So, the surgeons took my foot up and took my knee out. Now my foot is my new knee!"
Family Members wanted for HOT PFCC Steering Committee
The Hematology Oncology Transplant (HOT) Patient and Family Centred Care Steering Committee is seeking family members with experience in oncology or hematology to join their committee.
This steering committee provides a forum for families and healthcare professionals to collaborate as partners in care to support, promote, guide and advance Patient and Family Centred Care in the HOT program. This committee meets the third Thursday of the month from 11:30am - 1:00pm.
Please email if you'd like to explore this opportunity.
NEW Family Guide
The ACH Family Guide booklet will be distributed to all families admitted to the hospital. It is also available online and at the Family & Community Resource Centre.
The guide is here to help patients and families access services at the Alberta Children's Hospital. It contains information to help people find their way around the hospital, as well as tips to help make a child's stay be as comfortable as possible.
In This IssueFeature Story: Beads of Courage
Family Advisory Council
PFCC Week Story
Family Members Needed
Nov 17 Seminar
Nov 18 Seminar
Nov 19 Seminar
PFCC Week Recordings
Check out this recently published article about youth volunteering, featuring Marisa Vigna, one of our CAYAC members!
Measuring Patient and Family Centred Practice and the Partnerships with Patients and Families
Establishing a system to track and measure the process and outcomes of patient and family centred care is critical to creating and sustaining successful change in organizational culture.
November 17, 2015
11:00 - 12:00 PM
Conference Room 10 (4th floor)
Palliative Care Consult Service
Staying Compassionate in Difficult Situations
This session will provide an understanding of common barriers to compassion and how they impact clinical practice.
November 18, 2015
12:30 - 1:30 PM
Is Your Hospital's Visiting Policy Outdated?
Better Together: A How-to for Changing the Concept of Families as "Visitors" in Hospitals.