PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to firstname.lastname@example.org.
Welcome to the June edition of Together We're Better.
Coming this Summer - Independence Camp
Building independence is important to the success of all youth as they transition into adulthood. This summer the Young Adult Rehabilitation Clinic at the Vi Riddell Children's Pain and Rehabilitation Centre is helping to provide youth ages 15-19 with the information they need to become independent adults by hosting Camp Independence.
Camp Independence is an opportunity for youth with mild to moderate disabilities, specifically motor impairments, to boost their independence skills in a supportive environment. This one week intensive summer program connects youth with local community resources and organizations, providing information, education and practice of a range of skills including transit use, map reading, cooking, health and wellness information, resume building, job interview skills, advocacy, managing your own medical condition and much more! Youth complete the week by staying in residence at a local post-secondary institution.
For more information on Camp Independence sessions, including minimum criteria for participation, application process and annual timelines, please contact Susan McIlwain at 403-955-7041 or via email.
Camp Independence Staff: Pamela Vega Munoz, Benjamin Fong, Lyndsay Bristow, Sandra Mish, Susan McIlwain
Parent Advisor Casual Position Opportunity at ACH
We are looking for 1-2 Parent Advisors that can join the Patient and Family Centred Care team to help move a few PFCC projects forward. If you have experience in using the health care services at Alberta Children's Hospital, a passion for Patient and Family Centred Care, and an interest in playing a valuable role on our team we would love to hear from you.This is a paid, part-time casual position that is based on project specific needs. The job posting closes on June 18 at midnight.
For further information about this opportunity please refer to the job posting link.
Share your PFCC Moment
We are gathering quick stories of Patient and Family Centred Care moments. Please share with us a recent memorable interaction you've had that tells the tale of Patient and Family Centred Care in action. We are interested in the experiences of staff, family, and patients.
PFCC Network in Action
We're grateful to our PFCC Network members for responding to several email requests in the last few weeks.
25 family members and youth provided useful feedback for a brochure being developed by a provincial pediatric working group to inform parents, caregivers and patients on the risk of pressure ulcer development in hospitalized children. Based on this feedback, a number of changes were made to improve the clarity of the document.
Patients and families also took a look at the research questions for a study being conducted this summer of ACH patients and families on hand hygiene. Their feedback confirmed the value of the study and pointed out some ways to make the information clearer.
As well, several staff, patient, and family members from the network have stepped forward to be on a working group to plan Patient and Family Centred Care Week which happens this fall, October 5-9. They will be meeting soon to brainstorm ideas to promote and celebrate PFCC at ACH.
The ACH PFCC Network is a great way for ACH staff to quickly engage patients and families in the work you are doing. We'd be happy to share more with you about how it works.
Monthly Engagement Tip:Engaging Patients and Families in Project Decision Making
Engaging patients and families in roles where they can contribute to making decisions, such as on quality improvement projects, can provide powerful and meaningful input that can lead to even better outcomes for all stakeholders. In order to create a successful engagement experience and gain the full benefit of patient and family involvement in decision making, consider the following:
- Identify who is involved in the project and what is included in the scope of the advisory work
- Actively listen to the Family Advisor
- Provide the Family Advisor with opportunities for skill building and development
- Support the Family Advisor with briefings and information
- Respond to the Family Advisor's contributions (may need to do this before and after each meeting)
- Resist the capture of single focus interests
- Build a team that can work together and understand each other
- Be willing to learn from the experiences of others and make changes where needed
Adapted from Avoid Engagement Pitfalls from AHS Engagement and Patient Experience. For this handout and others go to A Resource Kit for Engagement Patients and Families at the Planning Table
In This IssueIndepedence Camp
Parent Advisor Opportunity
Share PFCC Moments
PFCC Network in Action
Monthly Engagement Tip
Webinar - Safer Communication
Webinar - Role of Security Dept
Let's Talk: Safer Communication
Wednesday June 24, 2015
12:00 PM - 1:00 PM
View from your computer
Effective communication and teamwork contribute to safe and reliable care, while gaps and breakdown in team communication may put our patients at risk.
In this interactive webinar you will learn more about strategies to improve communication and teamwork as described by the experiences of an interprofessional team in trauma services.
The Role of the Security Department in Patient and Family Centred Care
Wednesday July 15, 2015
11:00 AM - 12:00 PM
(ACH, 2nd Floor)
Every department plays a critical role in building a patient and family centred culture, including Security. Join this webinar to learn how the Security Services directors, managers, and staff at the University of Michigan Hospitals & Health Centres have been key partners in advancing patient and family centred care.
Everyone is welcome to view this webinar in Room B2-200, across from the main elevators on the second floor of ACH.
Families and Youth with Developmental Disabilities
Families and Youth with Developmental Disabilities (see sample list below) are asked to complete a survey to help guide a group of health professionals, families, scientists and administrators from across Canada about a research program that will focus on improving the lives of children and youth with developmental disabilities and their families.
The goal is to conduct research which will help people with or at risk for intellectual disability, autism spectrum disorder, cerebral palsy, attention deficit disorder, learning disabilities, development coordination disorder, spina bifida, or genetic syndromes with brain malformations, among others.
The researchers want to be sure they are asking the right research questions that can make a difference in the lives of children with developmental disabilities and their families.