PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to email@example.com.
Welcome to the April edition of Together We're Better.
Emily's Backyard Expands!
Since 1986, parents have been able to drop patients and siblings of patients off at Emily's Backyard where professional staff and volunteers provide safe, nurturing care in a family centred environment. This free service provides short-term care (max 1.5 hours) for children of all ages. Last year, close to 10,000 children used the space and 75 volunteers contributed over 5000 hours. Funds are provided through generous funding from the Alberta Children's Hospital Foundation.
On March 31st, a new Emily's Backyard site opened at the Child Development Centre (CDC) across the street from the main building of the Alberta Children's Hospital. Families with appointments at the CDC will now be able to access child minding services without having to travel between the two buildings. Therapists and physicians will also use the space to observe children in a natural play setting. The creation of this new location was made possible by a generous anonymous donor and ongoing funding from the Foundation.
The new site is open Tuesday through Thursday from 8:30am-4:00pm. The main site continues to be open Monday through Friday.
Name Tags are Arriving at ACH
Over the last month, you may have noticed an increase in the number of staff wearing AHS name tags. All clinical and operational staff now have these badges with the long term plan to have all staff onsite wear one.
Patients and families tell us they do not understand the various roles of healthcare providers. The wearing of name tags along with the consistent use of NOD practice (stating your Name-Occupation-Duty) has proven to be an effective communication tool for reducing patient anxiety and stress and promoting Family Centred Care.
PFCC Steering Committee - Meet our Members
The role of the ACH Patient and Family Steering Committee is to support, promote, guide and advance Patient and Family Centred Care (PFCC) for Alberta Children's Hospital and within Child Health for AHS. The Committee has equal representation from staff members and family members.
In this newsletter, we'd like to introduce you to two of our newest members.
Garrity Beales is an Interior Designer with extensive project management experience. She and her husband welcomed a baby boy in the spring of 2013. Unfortunately, he was born with multiple health complexities and his time on earth was short; he died in August 2013. During her son's brief life, Garrity spent extended periods of time at ACH with her son including time in the NICU, PICU, and at Rotary Flames House. Garrity is grateful that she and her husband were included in all the discussions and decisions surrounding their son's medical complexities and his overall care plan. She says: "I strongly believe that the best care is the result of a respectful collaborative engagement from each party."
After this challenging experience, Garrity became passionate about continuing the knowledge she gained from the life as a parent of a medically fragile child and utilizing her professional skills to make a difference to others. The Steering Committee presented such an opportunity. For Garrity "the most rewarding for me are applying my professional background and drawing from my experiences at ACH to help benefit the advancement of Patient and Family Centred Care at ACH. This committee supports a process that has tangible results and the overall impact is far reaching."
Molly Doran finished her nursing degree a year ago and has been a nurse on Unit 2 since May 2014. Prior to her nursing studies, Molly finished a Bachelor of Commerce and worked in the marketing field. Patient and Family Centred Care (PFCC) is important to Molly because she believes that health involves families; not just one patient in isolation. She has personal experience where she and her family were not included in decision-making and care planning of a sick family member. Says Molly: "I poured my learning from that experience into my own clinical practice and have always made family engagement and collaboration a focus of the care I provide. ACH promotes these values that I hold dearly and I am proud to be a part of an establishment that makes PFCC a priority."
Molly is committing her own time to be a part of the PFCC Steering Committee. Molly says, "I am excited to be part of the PFCC Steering Committee at ACH because it gives me the opportunity to be involved in great initiatives to further family engagement. We have the ability to engage patients and families in every aspect of care: from food service to outpatient clinics to unit admissions and ER visits."
Monthly Tip: Being an Engaged Advisor Serving on a Committee
The word is out - patient and family advisors are wanted at many different points on the care continuum. In the months to come, there are going to be more and more opportunities for Patients and Families to serve on a working group, hospital committee or special project as an Advisor. Here are some tips to help prepare you for such a role:
- Although the personal experiences and views you bring to the table are extremely valuable and an important input, wherever possible try to also think about shared goals that other patients and families might have.
- Seek to offer constructive input that furthers the goals of the group. Ask yourself before sharing a story - is it relevant to what is being discussed? Does it reflect shared goals that other patients and families would have or benefit from?
- Active participation is very important for all committee members, but listening and seeking to understand different perspectives is just as valuable to the participation process.
- Be on-time for meetings and if you can't attend a meeting, let your staff liaison know.
- Don't be afraid to ask someone to clarify a point or explain what something might mean. This can be done within the meeting or you can arrange a meeting with the liaison afterwards to review any questions you might have.
- Respect the information that is shared during a meeting, and follow ACH's confidentiality guidelines.
- Feel free to ask for feedback (and/or support) from your Staff Liaison to help you feel comfortable and confident in being an active participant in the meetings.
- Enjoy the experience!
If you have any tips as an Advisor we would love to hear from you! Email your tips to firstname.lastname@example.org for consideration in our next month's Newsletter.
In This IssueEBY Expansion
AHS Name Tags
Steering Committee Members
Monthly Engagement Tip
Webinar - Challenging Situations
Webinar - Research to Practice
Location and date changed (from May 7)
Applying Patient and Family-Centered Concepts in Dealing with Challenging Situations with Patients and Families
Thursday May 21, 2015
11:00 AM - 12:00 PM
(ACH, 2nd Floor)
Join this webinar to learn how to identify and respond to situations that challenge hospital front line staff to develop and sustain partnerships with patients and families. Explore strategies for educating and supporting staff for managing challenging situations in ways that are consistent with patient and family-centered concepts.
Everyone is welcome to view this webinar in Room A2-905 at the back of the Family and Community Resource Centre on the 2nd Floor.
Building Bridges: Moving Research to Practice
Wednesday May 13, 2015
9:00 - 10:30 AM
Conference Room 7
(ACH, 4th Floor)
Wednesday May 20, 2015
9:00 - 10:30 AM
(ACH, 2nd Floor)
Or view from your own computer
It can be challenging to move research into practice. The great news is that implementation science offers a systematic way to bridge the gaps from research to practice.
This two-part webinar will provide an overview of the National Implementation Research Network active implementation frameworks and supporting tools and then illustrate how these frameworks have been applied in pediatric practice at Glenrose Rehabilitation Hospital.
These webinars are available for viewing in Conference Room 7 on May 13 and Room B2-200 on May 20. Or you can sign up to view it on your own computer.
Reminder to Volunteers
If you are a volunteer with a parking placard for Lot 58, please make sure you have requested your 2015-16 placard from the ACH Parking Office.