PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to firstname.lastname@example.org.
Welcome to the November edition of Together We're Better.
Involving Families in NICU Fellows Training - How to Share Difficult News
Neonatologists are faced with sharing difficult news with families on a daily basis. This past September/October five of our parent volunteers participated in learning sessions designed to teach about this challenging task to Fellows who are training to be Neonatologists.
At the first session, the Fellows were provided with information about Patient and Family Centred Care and strategies to share difficult news. The parent volunteers then shared about their personal experience in receiving difficult news.As one participant reported, hearing the parents' experience was "emotional and provides me a great insight into the parents feelings and experience that they face in the day to day stay in NICU".
At the second session, the Fellows participated in role plays to practice sharing difficult news. The parent volunteers played the role of parent in these scenarios. Although they were acting, their personal experience allowed them to be very convincing in their part. The participants appreciated the opportunity to practice with parents who had been through similar situations and described the scenarios as very realistic.
The Alberta Children's Hospital was a host for the Canadian Association of Paediatric Centres (CAPHC) Conference October 18th to 20th. Here are some Patient and Family Centred Care highlights:
Nine conference participants from across the country came a day early to observe a meeting of the Child and Youth Advisory Council (CAYAC).
CAYAC members and and family members co-led tours of the Alberta Children's Hospital for conference participants.
Youth and family members from CAYAC, the PFCC Steering Committee, and Family to Family Connections were active participants in the conference. We had representatives at the CFAN meeting and the full conference. Several posters were co-authored and presented by youth and family members.
A Winning Poster!
The poster "Expanding Peer Support: Piloting Family Bedside Orientations at Alberta Children's Hospital" by Sandi Oelhaupl, Heather Caya, and Marie McNaughton was selected for the 2014 CAPHC Poster Award for the category of Family Centred Care.
Provide your Feedback for the AHS Patients First Strategy
The AHS Patients First Strategyoutlines strategies and recommendations to ensure that Patient- and Family-Centred Care is at the forefront of delivering seamless and effective health care to Albertans.
This strategy was developed in consultation with staff, patients, and families including our PFCC Steering Committee and CAYAC. These two groups recently reviewed the proposed strategy and provided further feedback.
Individual feedback from staff and families is also encouraged. Staff members can complete an anonymous survey on Insite. Families members can email and request a copy of the survey and feedback sheet.
Farewell to Sherri Wuetherick
It is with regret that we share the news that Sherri Wuetherick has left her role at the Alberta Children's Hospital for a new position as the Patient/Citizen Engagement Facilitator at the South Health Campus. For the past five and a half years, Sherri has been the ACH staff Family Centred Care Parent Advisor and co-chair of the Patient and Family Centred Care Steering Committee. Prior to joining the staff, she was involved for many years as a volunteer parent advisor. Sherri used her personal experience and knowledge of Patient and Family Centred Care to help all of us reflect on our Patient and Family Centred Care practices. We will miss her quiet wisdom that encouraged us to think differently. We are glad she will be using her knowledge and experience to further the work of Patient and Family Centred Care at the South Health Campus and look forward to partnering with her in the future.If you haven't had a chance to give Sherri your best wishes, you can still reach her at the same email address.
In This IssueNICU Fellows Training
Patients First Strategy
Farewell to Sherri
President's Speakers Series
PFCC Steering Committee
Parent Volunteers Needed
Bedside Rounds at the Alberta Children's Hospital: The Journey to Providing a Truly Patient and Family Centred Care Experience at the Bedside
Wednesday November 19
8:30 AM - 9:30 AM
An opportunity to learn more about Dr. Chantelle Bernard's research on engaging families in bedside rounds at ACH.
You Want Me To Do WHAT? Defining the Role of a Patient- and Family-Centred Care Staff Liaison.
Thursday November 20
2:00 PM - 3:00 PM
Conference Room #14, 4th Floor
This webinar from the Institute for Patient and Family Centred Care will discuss the role of the staff liaison in developing and sustaining partnerships among health care professionals and patient and family advisors. Insights from staff liaisons working across North America will be shared about what it takes to experience success and build a positive patient- and family-centred program.
Learning from the Best: President's Speaker Series
What you we mean by "Patient Experience"
Dr. Arthur Frank
Thursday December 4th
Noon - 1:00 PM
Via Telehealth ACH Room B4-010
Dr. Arthur Frank, Betanien University College in Bergen, Norway, and Professor Emeritus of Sociology at the U of C, will share an inspirational perspective on hope for the patient, and ways we can continue to improve patient outcomes. He will share stories that explore what patients need-and what sometimes prevents them from articulating those needs-and showcase what health-care workers can do to positively affect the patient experience.
Review draft of new ACH Family Guide
We are looking for family members and staff to review a draft of the revised Alberta Children's Hospital Family Guide.
This guide features the amenities and support available to families at ACH. It will be given to families when they come to the hospital.
We need your help to make sure it is complete and accessible. Your feedback will be required by November 27th.
Staff and Family Volunteers for the ACH Patient and Family Centred Care Steering Committee
The ACH Patient and Family Centred Care Steering Committee provides an opportunity for families and health care providers to work together as partners in care to support, promote, guide, and advance Patient and Family Centred Care. This committee was created four years ago and has an equal number of staff and family representatives. Members meet for two hours once a month and also have opportunities to get involved in projects outside of meeting time.
Parent Volunteers Needed for Bedside Orientations
We are looking for parents whose children have experience as an inpatient at the ACH to do bedside orientations. These orientations provide newly admitted families with information about the hospital, the supports available, and how to partner with the healthcare team. You would commit to coming every other week for a 3 hour period to connect with families.