PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to firstname.lastname@example.org.
Welcome to the August edition of Together We're Better.
International Patient and Family Centred Conference - Vancouver
The Institute for Patient and Family Centred Care hosted their 6th annual International Patient and Family Centred Care Conference in Vancouver August 6 to 8. The theme for the conference was "Partnerships for Quality and Safety". The conference was attended by a number of AHS staff and patient and family advisors including Marie McNaughton, Family and Youth Engagement Coordinator from ACH and CAYAC member Marisa Vigna. Marisa co-presented with Sheila Smith about the tools developed by AHS Engagement and Patient Experience and shared a powerful story about her healthcare experience.
Some thoughts for you to consider from the conference:
"Inclusion of the patient, family, public, and community is no longer an "if" discussion ... it's a when, where, how discussion."
- Jim Conway
"For safer care, a highly resilient organization needs to make a strong response to a weak signal of failure."
- Sir Liam Donaldson
"What patients want is not rocket science, which is really unfortunate, because if it were rocket science, we would be doing it. We are great at rocket science.We love rocket science.What we're not good at are the things that are so simple and basic that we overlook them."
- Laura Gilpin, Griffin Hospital
The Voices of Patients and Families at ACH ...
We have been active the past couple of months recruiting patients and families to support work being done around the hospital. Here's some examples of ways patients and family members are providing input:
- a number of parents reviewed a video being developed for families on partnering with the healthcare team
- a parent and two youth are sitting on a working group planning a template for unit whiteboards
- several parents with NICU experience have volunteered to help train NICU Fellows on sharing news with families
- a member of the PFCC Steering Committee has been appointed to the ACH Diversity Committee
We continue to look for staff, patients, and families to provide their input into patient and family centred care work. Please contact us if you are interested in joining our Patient and Family Centred Care Steering Committee or Network. And please tell others about this opportunity to get involved!
What will you do for Patient and Family Centred Care Week? September 29 - October 3
We encourage every department/unit/clinic at ACH to start planning now for our third annual and the first provincial AHS Patient and Family Centred Care Week.The purpose of PFCC Week is to raise awareness, promote action and celebrate the great work being done within AHS.
This year's theme is Collaboration, Compassion, Coordination - ALWAYS.
Here's some ideas to get you thinking about what your group can do during the week:
- invite a patient or family member to come to a staff meeting to share a story about their experiences
- show the ACH PFCC video
- plan a staff discussion on PFCC - for example, ask the group to reflect on the importance of collaboration, compassion, and coordination in their work with patients and families
- decide on an ALWAYS event that all staff will focus on for the week -perhaps everyone will provide their name and role whenever they meet a patient or family member
- set up a graffiti wall where patients, family, and staff can provide their thoughts and ideas. You'll need a large piece of paper, some felt pens, and an opening line such as "We are Patient and Family Centred when ..."
Visit the Engagement and Patient Experience website for more ideas on how to celebrate PFCC Week.
PFCC Week 2014 Theme:
Our next newsletter will feature events happening site-wide for PFCC Week.
In This IssueIPFCC Conference
Patient and Family Voices
CAYAC Meeting Dates
Evidence Boost: A Review of Research Highlighting how Patient Engagement Contributes to Improved Care
G. Ross Baker
This brief provides a context and summary of research findings on case studies of patient engagement for health system improvement across organizations in four countries.
Upcoming Conferences for Patient and Family Advisors
Safe Transitions in Care Pre-Conference October 28, 2014
Family Advisory Day Conference October 29, 2014 (new date)
Engagement and Patient Experience, Quality & Health Improvement, Alberta Health Services, are inviting Patient and Family Advisors to participate in the upcoming Family Advisory Day Conference and the Safe Transitions in Care Conferences. Expenses will be covered.
2014-2015 CAYAC Meeting Dates
The dates for the meetings of CAYAC (the Child and Youth Advisory Council) have been set for the 2014-2015 year. Book your time to consult with CAYAC on your child health program or service.
2014-2015 Meeting Dates:
- September 13, 2014
- October 18, 2014
- November 29, 2014
- February 7, 2015
- March 14, 2015
- May 2, 2015
Climbing Mountains: Leadership & Resilience in Paediatric Healthcare
October 19-21, 2014
The program is now available for the annual conference of the Canadian Association of Paediatric Health Centres (CAPHC).
This conference is being hosted here in Calgary with significant participation from the Alberta Children's Hospital community.
On the Sunday, October 19, the Canadian Family Advisory Network will host a symposium.
Early bird registration ends August 22nd.