PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to firstname.lastname@example.org.
Welcome to the June edition of Together We're Better.
ACH Patient and Family Centred Care Steering Committee
The ACH Patient and Family Centred Care Steering Committee provides an opportunity for families and health care providers to work together as partners in care to support, promote, guide, and advance Patient and Family Centred Care. This committee was created four years ago and has an equal number of staff and family representatives. Members meet for two hours once a month and also have opportunities to get involved in projects outside of meeting time. Some of the work the Committee has been involved in includes: PFCC education for staff and families, PFCC Rounds, planning for PFCC week, developing a PFCC video and PFCC definition for ACH, review of written materials, participation in consultations, and working on sub-committees.
Come Join us - staff and family members wanted for the PFCC Steering Committee
We currently have opportunities for staff and family members to join the ACH PFCC Steering Committee. We are looking for people who are passionate about Patient and Family Centred Care, willing to share their experience and knowledge, are able to see beyond their own personal experiences, have good communication skills, and enjoy working in partnership with others. All interested staff and family members will go through an interview process with members of the PFCC Steering Committee. If you are interested in learning more about this opportunity and getting involved with the work of the Committee, please contact us. Together We're Better!
Youth Wanted - CAYAC is recruiting new members for the fall
The Child and Youth Advisory Council is seeking new members for the fall and we need your help. If you know of a youth aged 12-17 who may be interested in providing a youth perspective to healthcare, please tell them about CAYAC. This year we are looking for new members who have experience as a patient (inpatient or outpatient) or as a sibling of a patient. We would also like to find more members from outside of Calgary to join us (Red Deer south).
Every month, we want to introduce you to some of the family members and staff involved with Patient and Family Centred Care initiatives at ACH.
Eva Eaton is a parent representative on the Patient and Family Centred Care Steering Committee. Eva is the mother of two daughters, one of whom had a multi factorial illness for about five years. She is now stable and recovering well. Eva has a deep empathy and compassion for parents whose children have a long term illness requiring weeks and months of hopsital care.
Eva got involved because she saw a poster asking for people to join the PFCC Steering Committee and she felt she had both personal and professional experience to contribute. Eva has learned that the leadership at ACH is committed to Patient and Family Centred Care. She believes it provides for better patient outcomes, faster recovery, and less trauma to patients and their families. She has seen first hand how the staff at ACH are committed to their patients. She believes that just like it takes a village to raise a child it takes the full complement of staff at ACH to support a patient and their family.
In Eva's words: ACH is a great institution that we can all be rightly proud of. I want to do my part to make a great institution even better. ACH was designed around Patient and Family Centred Care with the parent beds in the inpatient rooms and the new NICU. I myself am a childhood cancer survivor and still to this day remember being separated from my parents when I was in the hospital. It would have meant so much to me to have my parents present as much as possible. No one knows a child better than their parents.
Cheryl Ann Oberg has been working and playing as Sparkle the Therapeutic Clown at ACH since 2004. Sparkle shares laughter, joy, compassion and wonder to the children, youth, families, and staff at the Alberta Children's Hospital. Through child directed laughter, play, and humor, she assists children and their families to minimize stress, deflect fear and provide comfort and support in health care experiences. Sparkle loves to share with families what Patient and Family Centred Care is all about on her daily rounds.
Cheryl Ann also knows what it is like to have a member of her own family be a patient at ACH. When her grandson was born he was rushed to the Alberta Children's Hospital and admitted to the PICU and then onto an inpatient unit. He had weekly visits to the casting clinic for the first year, six surgeries in the next three years, and six years of physiotherapy.
Cheryl Ann has been an active member of the Patient and Family Centred Care Steering Committee since January 2013. She has co-presented at the ACH Family Centred Care Rounds and will be presenting 'Laugh Until It Helps' Building Resiliency Through Humour and Laughter at the Canadian Family Advisory Network Symposium being held in Calgary in October.
In This IssueACH PFCC Steering Committee
Come Join Us
CAYAC Meeting Dates
CAPHC is looking for parents of medically complex children to participate in web-based group discussion
CAPHC (the Canadian Association of Paediatric Health Centres) is embarking on a project to understand better the resource and service needs of children and youth with medical complexity. They are looking for parents of these children to participate in a two hour, web-based group discussion to gain a better understanding of your experience in order to develop this research
2014-2015 CAYAC Meeting Dates
The dates for the meetings of CAYAC (the Child and Youth Advisory Council) have been set for the 2014-2015 year. Book your time to consult with CAYAC on your child health program or service.
2014-2015 Meeting Dates:
- September 13, 2014
- October 18, 2014
- November 29, 2014
- February 7, 2015
- March 14, 2015
- May 2, 2015
The 6th International Conference on Patient and Family Centered Care
Partnerships for Quality and Safety
August 6-8, 2014
The Institute for Patient and Family Centred Care is bringing their international conference to Vancouver this summer. This is a great opportunity to learn about excellence and innovation in Patient and Family Centred Care from across North America and around the world.
Details on the IPFCC website: www.ipfcc.org
Climbing Mountains: Leadership & Resilience in Paediatric Healthcare
October 19-21, 2014
The preliminary program is now available for the annual conference of the Canadian Association of Paediatric Health Centres (CAPHC).
This conference is being hosted here in Calgary with significant participation from the Alberta Children's Hospital community.
On the Sunday, October 19, the Canadian Family Advisory Network will host a symposium.