PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to firstname.lastname@example.org.
Welcome to the May edition of Together We're Better.
Next FCC Rounds - May 30th Focus on the Transition Journey
You won't want to miss the next Family Centred Care Rounds at ACH on Friday, May 30th (8:30 a.m. - 9:30 a.m.). The theme for this session is the transition journey. Two digital stories and our guests will explore the move from pediatric care to adult care and what is needed to prepare and support patients and families on this journey. Come and join the conversation with our presenters - Lori Fairservice, a nurse with clinical experience with transitions; Keighley Schofield, a youth who recently transitioned to the adult world; and Cindy Chomistek, a mother of a young adult who has also made this transition.
This session is open to all staff and families. No need to sign-up. You will find us in the ACH Amphitheater on the 4th floor.
Updated FCRC Website - Ready for Viewing
Did you know that the Family and Community Resource Centre (FCRC) has a website? This recently updated resource is your go-to site for information on:
- FCRC programs and services
- Patient and Family Centred Care and opportunities to participate
- Library resources available in the FCRC (online catalogue)
- Resources available in the community
- Upcoming Community Education Service (CES) sessions
And more! Check it out.
Parents as Partners Tip Sheets Available on Website
If Patient and Family Centred Care is a partnership, what do families need to prepare them to be a partner in their child's healthcare? This is the question being tackled by the Parents as Partners Working Group - a group of volunteer parents with years of experience with their child's healthcare. Their first project is a set of four tip sheets for parents which provide tips on building a relationship, sharing information, making decisions, and dealing with conflict.
You can find these tip sheets under "Helpful Tips" on the FCRC website. Please share them with others.
Call for Participation: CAPHC is looking for parents of medically complex children to participate in web-based group discussion
CAPHC (the Canadian Association of Paediatric Health Centres) is embarking on a project to understand better the resource and service needs of children and youth with medical complexity. They are looking for parents of these children to participate in a two hour, web-based group discussion to gain a better understanding of your experience in order to develop this research.
Every month, we want to introduce you to some of the family members and staff involved with Patient and Family Centred Care initiatives at ACH.
This month, meet Brenda McInnis, an active member of the Patient and Family Centred Care Steering Committee. Brenda is the mother of three boys. Her youngest son, now 20 years old, has multiple disabilities and complex medical needs. He has been a patient of about 30 clinics at ACH and endured multiple surgeries.
Brenda generously shares the wisdom she has gained from her extensive experience caring for her son and working with numerous professionals in the healthcare system. She is a member of the Parents as Partners Working Group and the Children with Complex Airways Needs Committee.She has contributed to the pilot bedside orientations, Patient and Family Centred Care Week, and the Family Centred Care Rounds. She has also been a family representative at CAPHC conferences and she and her family will be speaking at the upcoming CAPHC conference this October.
Brenda gets involved because she wants to continue to support and improve the patient and family experience at ACH and to support and assist other families who are navigating the healthcare system. She is grateful for the outstanding care and support that healthcare providers and ACH provided through her family's 20 year journey in healthcare.
In Brenda's words: Over and over again, I have seen that ACH is dedicated to supporting patients and families in all areas of their hospital experience. I have had a brief glimpse of the health care provider side of hospital operations and am deeply grateful for their dedication to children and families.
In This IssueNext FCC Rounds
Updated FCRC Website
Parents as Partners Tip Sheets
Call to Participate
Presentation May 29
FCC Rounds May 30
Speaker Series June 3
Thursday, May 29
Compassion and Empathy in Difficult Situations
9:00 a.m. - Noon
The Patient and Family Centred Care Community of Practice (CoP) is hosting a half day workshop on compassion and empathy.
As healthcare providers we want to preserve and honour the human connection in healthcare and be compassionate and emphatic with our patients, families, and ourselves. This session will focus on the skills needed to stay compassionate and empathetic when relationships become difficult.
Friday, May 30
Family Centred Care Rounds
The Transition Journey-Moving to Adult Care
8:30 - 9:30 a.m.
This session will feature digital stories about the transition from pediatric to adult medical services. Our guests - a healthcare professional and a youth and a parent with transition experience - will have a conversation about their experiences
This is an opportunity to hear the personal experience and perspectives of others and to critically reflect on your own experiences and the real practice of Family Centred Care.
Staff and family members are encouraged to attend. No sign-up is required.
Tuesday, June 3
Learning from the Best: AHS President's Speaker Series
Patient and Family Centred Care
8:00am - 9:00am
Rm C2-143, ACH
This AHS President's Speaker Series features a discussion on patient and family centred care by Dr. Bridget Duffy, Chief Medical Officer, Vocera Communications.
During her career, Dr. Duffy has worked to address critical communications in health and find innovative ways to reinforce the all-important human connection to health care. When she was Chief Experience Officer of the Cleveland Clinic - the first senior position of its kind in the U.S. - she led the institution in improving patient experience as its top strategic priority to improve clinical outcomes. For her President's Speakers Series talk, Dr. Duffy will draw from her health care expertise to deliver a presentation on patient- and family- centred care and its importance in improving clinical outcomes.
You can attend this session via teleconference in Room C2-143 at the Alberta Children's Hospital.
The 6th International Conference on Patient and Family Centered Care
Partnerships for Quality and Safety
August 6-8, 2014
The Institute for Patient and Family Centred Care is bringing their international conference to Vancouver this summer. This is a great opportunity to learn about excellence and innovation in Patient and Family Centred Care from across North America and around the world.
Details on the IPFCC website: www.ipfcc.org
Climbing Mountains: Leadership & Resilience in Paediatric Healthcare
October 19-21, 2014
The preliminary program is now available for the annual conference of the Canadian Association of Paediatric Health Centres (CAPHC).
This conference is being hosted here in Calgary with significant participation from the Alberta Children's Hospital community.
On the Sunday, October 19, the Canadian Family Advisory Network will host a symposium.