PFCC - Newsletter
You can learn about Patient and Family Centred Care activities at Alberta Children's Hospital by reading our monthly e-newsletter - Together We're Better. This newsletter will give you insight into Family Centred Care Initiatives, profile our Family Centred Care champions, and keep you up to date on upcoming education opportunities. Archived copies are available on the FCRC website.
To receive the newsletter via email, please send your email address to firstname.lastname@example.org.
Welcome to the April edition of Together We're Better. This month we'd like to share with you an example of Patient and Family Centred Care in the design of the new NICU at the Alberta Children's Hospital.
Take the AHS Patient and Family Centred Care Survey
AHS is working on a system wide Patient and Family Centred Care Strategy and are looking for your feedback. You can provide your input from a staff or patient/family perspective. Please take the time to complete the survey.
The New ACH NICU - Patient and Family Centred Care from the Ground Up
At the end of February the doors opened to the new Edwards Family NICU on the fourth floor of the Alberta Children's Hospital. This is home to 14 beds for some of the most critically ill newborn babies from Southern Alberta. This new Unit is not only a model of the latest design in neonatal intensive care but also an excellent example of family engagement from the initial planning to the move-in.
For input into the design, families on NICU units were asked to do a "picture walk" - with a disposable camera they took pictures around the NICU and created a photo journal with their comments of what they liked and what could be improved. Families with previous experience in a NICU created story boards of their journey with simple illustrations. The journals and story boards were considered and many of the ideas incorporated into the design.
After the design for the space was developed, the families were invited back to review it and provide further comment. They were also engaged as decisions were made throughout the process. For example, potential furniture such as sofa beds and breastfeeding chairs were brought into the temporary NICU unit for families to test.
Designing a NICU with Families in Mind
The Edwards Family NICU has incorporated many elements that supports the family's presence and participation in their infant's care.
- individual baby rooms with parents sleep space separated by a curtain
- in-room storage space for family and baby items
- breastfeeding chair in each room with pumps available for bedside pumping
- double rubber floors and dropped ceilings to significantly reduce noise
- a quiet family lounge with kitchen, sitting room, TV, computers, phone, and child play centre
- a quiet consultation room that provides contemplation space as well as space for meeting with families about patient car
One Parent's Experience in the Edwards Family NICU
Aaron knows what its like to spend time in a NICU. She has been at ACH since November with her son Keaton who was born at 25 weeks gestation. Together they moved into the new Edwards Family NICU at the end of February.
Aaron is from out of town and is thrilled she now has the option to stay overnight in her son's room. Before the new NICU opened, she would stay with her parents when she was in the city which meant she missed both her husband and her baby. Now she feels like she has her own space at the hospital and can be like every other mother, getting up at night to check on her child or change a diaper.
The new space makes it easier for Aaron to be involved in her son's recovery. She likes having a quieter space where "its just you and your kid" and feels there is more opportunity to hold her child and bond with him.
In This IssueAHS PFCC Survey
New ACH NICU
Designing a NICU for Families
One Parent's Experience
FCC Rounds - May 30
CAPHC Poster Abstracts
Friday, May 30
Family Centred Care Rounds
8:30 - 9:30 a.m.
Mark your calendar for the next Family Centred Care Rounds.
This session will feature digital stories about the transition from pediatric to adult medical services. Our guests - a healthcare professional and a youth and a parent with transition experience - will have a conversation about their experiences
This is an opportunity to hear the personal experience and perspectives of others and to critically reflect on your own experiences and the real practice of Family Centred Care.
Staff and family members are encouraged to attend. No sign-up is required.
The 6th International Conference on Patient and Family Centered Care
Partnerships for Quality and Safety
August 6-8, 2014
The Institute for Patient and Family Centred Care is bringing their international conference to Vancouver this summer. This is a great opportunity to learn about excellence and innovation in Patient and Family Centred Care from across North America and around the world.
Details on the IPFCC website: www.ipfcc.org
Climbing Mountains: Leadership & Resilience in Paediatric Healthcare
October 19-21, 2014
The preliminary program is now available for the annual conference of the Canadian Association of Paediatric Health Centres (CAPHC).
This conference is being hosted here in Calgary with significant participation from the Alberta Children's Hospital community.
On the Sunday, October 19, the Canadian Family Advisory Network will host a symposium.
Invite for Poster Abstracts
Deadline: May 31
There is an opportunity at the CAPHC Conference to showcase your work at a poster session.
One of the four categories is Family Centred Care. You can submit an abstract for a poster that highlights a project that demonstrates family-centered care principles, both in the content of the project, and by involving families and/or young people in the design, evaluation, and dissemination of the project.